The Health Cares Exchange Initiative, Inc. (HCEI) founded at Boston in 1992, is an educational public charity focused on continued education and burnout prevention for caregivers. HCEI held the first-ever nationwide focus groups with both paid and non-paid AIDS caregivers, then developed a dynamic burnout prevention skills building workshop that has been presented to a variety of caregivers. HCEI also developed a one to four-day long capacity building workshop for rural AIDS caregivers. For information contact:
Other Resources
| Family Caregiver Alliance | www.caregiver.org |
| National Family Caregivers Association | www.nfcacares.org |
| American Institute of Stress | www.stress.org |
| Today’s Caregiver | www.caregiver.com |
| Web of Care | www.webofcare.com |
| Assn. Of Nurses in AIDS Care | www.anacnet.org |
| Healing Well | www.healingwell.com |
This web site has been selected as a recipient of the
highly regarded "Editor's Choice Award" from
HealingWell.com.HealingWell.com is a thriving community and information resource site on diseases, disorders and chronic illness, including feature articles and information, patient stories, community message boards and chat, free email, free web pages, medical news, books, and links to disease-related web sites.
Books:
Maslach Burnout Inventory, 1986, Consulting Psychologists Press, Palo Alta, CA
60 Second Stress Management, Dr. Andrew Goliszek
The Relaxation and Stress Reduction Workbook, Davis, Eshelman & McKay
Taking Care of Aging Family Members, Lustbader & Hooyman
The 36 Hour Day: Family Guide to Caring for Persons with Alzheimers, Mace & Rabins
How to Care for Aging Parents, Morriss
Articles:Burnout in Hospital Social Workers Who Work with AIDS Patients, Oktay, Social Work,
September 1992
Measurement of Experienced Burnout, Maslach, Journal of Occ. Behavior, v. 2, 1981
Psychological Impact on Staff of Caring for People with Serious Disease, Catalan, et. al,
Journal of Psychoanalytic Research, v. 40 no.4, 1996
Psychological Impact of HIV-related Caregiving on Health Providers, Silverman, Am J.
Psychiatry, v. 150, 1993
Emotional Exhaustion and Distress Among Nurses, van Servellen & Leake, JANAC,
v.5 no.2, March-April 1994
Burnout in Nurses Who Care for PWAs, Driedger & Cox, AIDS Patient Care, v. 5, 1991
The AIDS Epidemic: Caring for Caregivers, Brewington, Nurse Admin Q,, v. 18, 1994
Hopelessness and Helplessness: Treating the Doctors who Treat AIDS Patients, LeBourdais,
CMAJ, v. 14 February 1989
Stressors of Hospice Home Care Nurses Caring for AIDS Patients, Slone & Stephany,
Am. J. Hospice & Palliative Care, January/February 1995
Videos:
The Caregiver Kit, 1990, The Alzheimer’s Assn., Chicago, IL
Survival Tips for New Caregivers, 1995, AARP, Washington, DC